The Scottish Parliament Cross-Party Group on Rare, Genetic and Undiagnosed Conditions

Since the elections in May, we have been approaching the signatories to our Pledge for Patients campaign, with the aim of reforming our Cross-Party Group for Rare Diseases (from the previous Parliament) as a new Cross Party Group for Rare, Genetic and Undiagnosed conditions.

We will keep you posted on our progress here, and in our news section. If you have any questions, or would like some further assistance, please contact Natalie Frankish, Scottish Development Officer on

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